解凍漸凍人病友協會籲政府介入

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2025-01-07 14:46 ALS drugs from Denali, Calico come up short, marking setback for Healey trial - BioPharma Dive
2025-01-07 00:57 Google’s secretive anti-aging company Calico finally released data. Its drug failed - STAT
2025-01-07 12:48 Denali Suffers Another ALS Fail With Phase II/III Flop - BioSpace
2025-01-08 15:30 Number of US ALS cases expected to increase 10% this decade: Study - ALS News Today
2025-01-07 21:30 Vermont's first ALS registry shows higher rates than the national average - Vermont Public
2025-01-08 10:15 A high-fidelity CRISPR-Cas13 system improves abnormalities associated with C9ORF72-linked ALS/FTD - Nature.com
2025-01-08 13:57 ALS sidelined this Israeli TV journalist. AI is helping him make a comeback. - The Associated Press
2025-01-08 18:11 Identifying the Reasons Behind Gaps in ALS Diagnosis Between Specialists and General Neurologists: Kuldip Dave, PhD - Neurology Live
2025-01-06 15:50 Dosing begins in Phase 1 trial of potential ALS therapy RAG-17 - ALS News Today

2025-01-06 23:23 Rapper Sean realizes 23-year dream with Korea's 1st ALS care facility - 코리아타임스
2025-01-06 09:39 Designed to improve quality of life for ALS patients, modular, eco-friendly homes also show what the future of homebuilding could look like - The Inlander
2025-01-06 20:11 ALS-stricken Israeli journalist returns to the screen powered by AI - Ynetnews
2025-01-07 10:52 Rival AbbVie and Denali prospects flunk phase 2/3 ALS tests, denting hopes for shared mechanism - Fierce Biotech
2025-01-09 10:31 Alchemab and Lilly collaborate to discover and develop ALS therapies - BioPharma-Reporter.com
2025-01-03 03:52 NLS-binding deficient Kapβ2 reduces neurotoxicity via selective interaction with C9orf72-ALS/FTD dipeptide repeats - Nature.com
2025-01-09 11:48 Education Moderates Motor-Cognition Relationship in ALS Without Dementia - Physician's Weekly
2025-01-06 21:31 Denali Therapeutics Announces Topline Results for Regimen G - GlobeNewswire
2025-01-08 19:03 Watch Jennifer Hudson surprise Air Force veteran from Chesterfield with ALS: 'I'm in God's path' - CBS 6 News Richmond WTVR
2025-01-08 16:11 Calico next to fail in ALS - The Pharma Letter

2025-01-08 17:58 Artificial intelligence empowered voice generation for amyotrophic lateral sclerosis patients - Nature.com
2025-01-08 15:30 Don’t like resolutions? Try setting an intention for the new year - ALS News Today
2025-01-08 10:15 Dual-targeting CRISPR-CasRx reduces C9orf72 ALS/FTD sense and antisense repeat RNAs in vitro and in vivo - Nature.com
2025-01-07 12:37 A single-center, single-arm, prospective, open-label, and comparative trial to evaluate the safety and tolerability profile of a 90-day oral L-arginine hydrochloride intervention for patients with amyotrophic lateral sclerosis - Nature.com
2024-10-25 07:00 Accelerating Access to Critical Therapies for ALS Act – ACT for ALS - FDA.gov
2025-01-07 21:08 Biotech Reverses Higher Despite A Misstep In ALS Treatment - Investor's Business Daily
2024-10-30 07:00 New Report Highlights Progress Made Because of ALS Ice Bucket Challenge - ALS Association
2024-08-14 07:00 New brain-computer interface allows man with ALS to ‘speak’ again - UC Davis Health
2025-01-06 23:02 Denali sinks after second strike in ALS - FirstWord Pharma
2024-12-20 08:00 Beyond the badge: First civilian defender graduates ALS - Maxwell-Gunter Air Force Base

2025-01-07 19:14 Denali's ALS Study Fails to Meet Primary and Secondary Endpoints - Yahoo Finance
2025-01-08 14:00 Australia’s Celosia heads toward clinic with gene therapy for ALS - BioWorld Online
2025-01-06 21:30 Denali Therapeutics ALS Drug Trial Falls Short as DNL343 Misses Primary Endpoint - StockTitan
2025-01-05 00:09 Dozens polar plunge in Boston's cold weather to raise money for ALS care - CBS Boston
2024-11-26 08:00 Making the Most of the Holidays: Travel Tips for People Living with ALS - ALS Association
2025-01-05 00:09 People dress up in costume to raise money for ALS with polar plunge in Boston - CBS Boston
2025-01-07 22:03 AbbVie and rival's ALS drugs both disappoint in study - Crain's Chicago Business
2024-05-13 21:47 AMP Amyotrophic Lateral Sclerosis - The Foundation for the National Institutes of Health
2024-10-16 07:00 Toxic protein may contribute to ALS development - Penn State Health News
2025-01-06 22:07 Denali Therapeutics Says ALS Trial Didn't Meet Endpoints - MarketWatch

2024-08-02 07:00 Can Genetics Help Explain Rare ALS Reversals? - ALS Association
2024-06-21 07:00 Scientists identify genes linked to brain cell loss in ALS - National Institutes of Health
2025-01-07 09:53 Calico draws blank in study of AbbVie-partnered drug for ALS - FirstWord Pharma
2024-11-06 08:00 National Institute on Aging invests an additional $7.3 million into NU-9 - Northwestern Now
2024-07-30 07:00 Study Finds Genetic Variant Among People Who Experience a Rare Recovery from ALS - Duke Health
2024-09-27 02:45 2024 Progress Report - ALS Association
2024-11-08 08:00 Local Foundation Supports Families Living With ALS - ALS Association
2025-01-09 05:21 Anime Last Stand (ALS) Codes (January 2025) - Beebom
2025-01-07 15:13 Denali Therapeutics’ Phase II/III trial of ALS therapy fails to meet primary endpoint - Yahoo Finance
2025-01-07 10:51 Denali slides after ALS drug flunks clinical test - pharmaphorum

2025-01-07 12:11 Denali suffers ALS drug failure in Phase II/III trial - The Pharma Letter
2024-07-09 07:00 ALS Nexus: Mapping Out the Future of ALS - ALS Association
2025-01-07 16:53 Double Whammy For ALS As AbbVie/Calico And Denali Drugs Fail - News & Insights
2024-09-24 07:00 Mayo Clinic awarded federal grant to study experimental ALS drug - Mayo Clinic
2024-11-12 08:00 National ALS Registry Newsletter and ALS Act - CDC
2025-01-07 14:15 Denali Therapeutics’ ALS drug fails to improve function and survival in phase 2/3 trial - OutSourcing-Pharma.com
2024-10-08 07:00 Research Spotlight: The Role of Diabetes and Diet in Preventing ALS - ALS Association
2024-09-27 07:00 Dancing with ALS: Breanna’s Story - ALS Association
2024-11-12 08:00 Racial Disparities in the Diagnosis and Prognosis of ALS Patients in the United States - CDC
2025-01-06 14:28 $2M grant helps N.H. FD take over hospital’s ALS service - EMS1.com

2024-11-12 08:00 Prevalence of ALS in all 50 states in the United States, data from the National ALS Registry, 2011–2018 - CDC
2024-06-12 07:00 Q&A: New Frontiers in ALS Research - Cedars-Sinai
2024-10-03 07:00 Creation of de novo cryptic splicing for ALS and FTD precision medicine - Science
2024-10-25 07:00 A Legacy of Hope: Dr. Stanley Appel’s Personal Journey in ALS Research and Care - ALS Association
2024-09-13 07:00 Les Turner ALS Foundation Commits $10 Million to Enhance ALS Research and Care - Feinberg News Center
2024-11-12 08:00 Temple University ALS Postmortem Core - CDC
2024-09-12 07:00 How one Virginia hospital is icing out ALS - VCU Health
2024-08-23 07:00 Brooke Eby: An ALS Hero - ALS Association
2024-08-16 07:00 Katie Adams: An ALS Hero - ALS Association
2024-11-18 08:00 Early life events may be the first steps on the multistep path to amyotrophic lateral sclerosis - Nature.com

2024-09-17 07:00 Resistance exercise in early-stage ALS patients, ALSFRS-R, Sickness Impact Profile ALS-19, and muscle transcriptome: a pilot study - Nature.com
2024-10-15 07:00 AI-powered communication solution for people living with ALS revealed at Lenovo Tech World - Lenovo StoryHub
2024-07-19 07:00 Voice signals database of ALS patients with different dysarthria severity and healthy controls - Nature.com
2024-10-29 07:00 Our New Normal: Navigating Life with ALS - Biogen
2024-11-08 08:00 Key Pathway Leading to Neurodegeneration in Early Stages of ALS Identified - University of California San Diego
2024-10-24 07:00 Graduation ceremony honors ALS Class 24-G - AF.mil
2024-08-12 07:00 Ron Faretra: An ALS Hero - ALS Association
2024-11-12 08:00 State-Metro ALS Surveillance - CDC
2024-12-29 08:00 Minnetonka woman helping connect ALS community through app "Pathfinders" - CBS News
2024-11-12 08:00 Authority for Congressional ALS Registry - CDC

2024-10-11 07:00 Finding Hope and New Treatments Through Clinical Trials - ALS Association
2024-07-19 07:00 Bringing the Community Together to Change the Future of ALS - ALS Association
2024-07-03 07:00 Let's See Quicker Diagnoses - ALS Association
2025-01-08 13:57 ALS sidelined this Israeli TV journalist. AI is helping him make a comeback. - Northeast Mississippi Daily Journal
2024-11-01 19:21 Cliff and Brooke Eby: A Caregiver Story - ALS Association
2024-10-04 07:00 Developing AI to Detect and Diagnose ALS Sooner - ALS Association
2024-07-31 07:00 Taking Action this Month: Advocating for the ALS Community - ALS Association
2024-08-03 07:00 Heterozygous knockout of Synaptotagmin13 phenocopies ALS features and TP53 activation in human motor neurons - Nature.com
2024-10-24 07:00 Sean M. Healey & AMG Center for ALS at Mass General Awards 2024 Gupta Family Endowed Prize for Innovation in ALS Care to Team Gleason - Massachusetts General Hospital
2024-08-13 07:00 Preventing ALS: Is it possible? - Medical News Today

2025-01-08 13:00 AI helps Israeli journalist, who has ALS, return to onscreen reporting - Lufkin Daily News
2024-09-12 07:00 Breakthrough technique may help speed understanding, treatment of MD, ALS - Harvard Gazette
2024-09-06 07:00 ALS Class 24-F Graduation - aetc.af.mil
2024-11-20 08:00 ROZEBALAMIN® FOR INJECTION 25 MG (MECOBALAMIN) FOR AMYOTROPHIC LATERAL SCLEROSIS LAUNCHED IN JAPAN - Eisai
2024-08-29 07:00 Houston VA clinic: ALS Certified Treatment Center of Excellence - VA.gov Home | Veterans Affairs
2024-05-30 07:00 Phillies Continue 40-Year Mission to #StrikeOutALS at Sunday’s ALS Awareness Night presented by Asplundh - MLB.com
2024-08-13 07:00 Creative Pursuits Program Now Available to Everyone, Everywhere - ALS Association
2024-09-20 07:00 Telehealth: Exploring Ways to Provide ALS Care for Everyone, Everywhere - ALS Association
2024-05-29 07:00 Guest Room for Veterans Living with ALS Celebrated with Ribbon Cutting | VA Indiana health care | Veterans Affairs - Veterans Affairs
2024-12-23 08:00 NeuroSense Therapeutics Enters Binding Term Sheet to Advance PrimeC for ALS - PR Newswire

2024-06-19 07:00 Mechanism of motoneuronal and pyramidal cell death in amyotrophic lateral sclerosis and its potential therapeutic modulation - Nature.com
2024-11-22 08:00 A Mom Is Always a Mom: An ALS Caregiver Story - ALS Association

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